Mandatory sepsis protocols have been adopted in New York and Illinois. Several more states are set to follow. In each case, these protocols have been the result of grassroots efforts spearheaded by individuals who feel personally invested in preventing needless deaths from sepsis. With the support of the Rory Staunton Foundation, you can make your state #SepsisSafe!
1. Request a meeting with your State Representative, State Senator or State Health Commissioner. Our friends at Common Cause have developed a database to help you reach your state representatives: Find Your Elected Officials Database. Your State Health Commissioner’s contact information can be found through our Take Action Page.
2. Before your meeting:
i. Print out copies of Rory’s Regulations and the Parents’ Bill of Rights (available in the Resources section below) to bring with you. These are the protocols in place in New York State and should act as a model for your state’s protocols.
ii. Familiarize yourself with the information in the document entitled “Protocol FAQ” (available in the Resources section below). It will help you make the case for sepsis protocols clearly and persuasively.
iii. Contact the Rory Staunton Foundation if you would like more information or to discuss the meeting before it takes place.
3. During the meeting:
iv. Educate your representative about sepsis and its impact. Remember, most people have never heard of sepsis and/or don’t understand the extent of the problem.
v. Don’t forget that the personal is powerful. Why are you concerned about sepsis? Do you have personal experience with sepsis? Are you a healthcare professional? Are you concerned constituent, alarmed by number of needless deaths from sepsis?
vi. Ask when you can follow up and what the next steps will be. Try to get as clear an idea of the process as possible.
4. After the meeting:
vii. Be persistent and don’t be discouraged! Elected officials have many competing priorities. Keep checking in regularly and schedule a follow up meeting if necessary.
viii. Get in touch with us at the Rory Staunton Foundation at any time to receive support and guidance on how to proceed and to report in on any action being taken in your state.
5. Be creative about gaining support your campaign for sepsis protocols. Circulate a petition, contact local media, hold an event, invite others with firsthand experience with sepsis to share their stories with the elected officials you meet with. You can circulate the Letter Template to Elected Officials (available in the Resources section below) amongst your friends allies and ask they to adapt and send or email it to the officials you are working with.