Watch our short video below to learn about what we do here at the Rory Staunton Foundation for Sepsis Prevention and all that we have achieved over the last four years. You can also find out how you can get involved and help us spread awareness about sepsis. Thanks for watching!
You can also help us by making a tax-deductible donation by clicking here.
As you well know, Rory’s death four years ago changed my life completely; it forced me to take on challenges and fight battles I certainly never wanted to undertake. I never imagined that I would become the co-founder of a national advocacy organization, testify before Congress, or appear on national television.
I also never thought I would be honored as a L’Oréal 2016 Woman of Worth. Today, I am excited to share this news with you: I have been selected as one of the 10 L’Oréal’s 2016 Women of Worth (http://bit.ly/2d2EES3) honorees, chosen from 6,200 nominations. Women of Worth honors women who have made an extraordinary impact in their communities. In choosing me, L’Oréal is identifying sepsis as a serious issue they want to highlight, and for that I am grateful.
A public voting period has ended to choose THE National Honoree for 2016. The Nationall Honoree will recieve a further 25,000 towards their cause. All honorees will be celebrated at a celebration Gala on November 15th at the Pierre Hotel in New York City.
Since meeting with the Rory Staunton Foundation for Sepsis Prevention and representatives from the National Family Council on Sepsis last year, Pennsylvania’s Health Secretary, Karen Murphy, has become a vocal and committed proponent of mandatory sepsis protocols in her state. Yesterday, at the Stopping Sepsis: Saving Lives in Pennsylvania Conference organized by the Pennsylvania Department of Health and held in Harrisburg, Secretary Murphy declared that, “Pennsylvania needs to implement new protocols focused on stopping sepsis in every hospital. Sepsis is a critical health issue that can affect anyone.”
The conference was the first-ever sepsis summit held in the state and was organized to introduce and discuss the proposed sepsis regulations. The conference was also the largest single gathering of chief medical, nursing, and quality officers ever convened in Pennsylvania. More than 200 representatives were in attendance from hospitals across the Commonwealth. Experts discussed new statewide sepsis policies aimed at the drastic reduction of sepsis deaths. Sepsis kills more than 9,000 Pennsylvanians each year.
Chris Aiello, a founding member of the National Family Council on Sepsis and the father of Emily Aiello who died from sepsis at the age of 15, helped open the event by sharing his own experience and his belief that sepsis protocols are critical to en ding preventable deaths from sepsis.
The Rory Staunton Foundation looks forward to Pennsylvania becoming the next “sepsis safe” state, following in the footsteps of New York and Illinois, where sepsis protocols are already in place and saving lives. The Foundation’s goal is to see mandatory sepsis protocols in every state by 2020.
It’s difficult to explain in a small package what sepsis is, I can find a definition but it’s impossible to describe the devastation that comes with it. When someone you love dies from sepsis, it’s often with the speed of lightning and when someone survives, it’s with devastating effects including loss of limbs.
Four years ago when Rory died, like other sepsis victims, we thought it was something rare that attacked him. We looked for answers and couldn’t find them. The Federal Government, represented by the CDC had no information,there was nowhere to go for support.
Today, because of our Foundation we have made steady progress. The CDC has now declared sepsis “a national emergency”, and the National Family Council on Sepsis exists to advocate, support and educate. We stand strong with Ann Ceschin, mom of Katie, with Liz and Tony Galbo, parents of Gabby, with Chris Aiello, dad to Emily, Vanessa, daughter to Wes and with the other families whose loved ones have died; together we are determined to remember.
Yesterday I was reminded why we go on; two messages, one from a mom, who was on her way to pick up her 17 year old daughters’ autopsy results revealing the cause of death to be sepsis, and another, a message from a young girl whose mom, she described as her best friend, had died from sepsis. Neither family had heard of sepsis or knew the signs.
So, I know we have more work to do because families are still being wiped out. When I got the honor of Women of Worth I was hesitant, because sepsis is only a tiny little bit about me, I don’t believe I need an award for what I have done, I am devastated, in fact during the photo shoot for L’Oréal, after “smiling” for hours I broke down and sobbed.
But you know what, good has come from this campaign-the circle of support has grown. I can’t give sepsis a headline or a short description but I can give it a name… “killer”. We are sick of hearing and retelling messages of death, but it’s our life, this is our cause, we would love to have heard four words before Rory got sick: “Could this be sepsis?” We didn’t know and we want to change that for others.
Because we still have so much work to do to educate about sepsis, I am asking you to continue to support our campaign for sepsis awareness, please vote in the the L’Oréal Women of Worth Campaign, we are half way through the voting period!
Please go to: and vote today and everyday through October 28th. Thank you.
This is one of my most favorite photographs of Rory – I just loved that little red hat. His hat was red and his sister Kathleen’s hat was pink. I can’t tell how many times I kissed his cheek in that little red hat.
When Rory and Kathleen got older of course we had to trade in the hats for something “older”. I remember folding Rory’s hat to put it away in his memory box. I remember thinking how lovely it would be for him to have his little red hat to show to his own children in years to come…
Since he died I have not opened his memory box, I have not looked at his little red hat. There are some things I have faced but this is not one of them. Sepsis, lack of knowledge of sepsis, and poor medicine killed my son. I know in my heart and soul that if I had known about sepsis Rory would be alive today.
I am embracing the L’Oréal Women of Worth campaign and competition to become the National Honoree because it will bring more awareness to sepsis. Everyone needs to know about this awful killer that can take your children, your loved ones, in a matter of hours or days. Sepsis took my little boy away – let’s get the word out there. Please vote for me each day until October 28th so we can use this platform to change the world. goo.gl/myTmAo
Last week, the Rory Staunton Foundation for Sepsis Prevention was invited to Sioux Falls, South Dakota, to address the South Dakota Association of Healthcare Organization’s (SDAHO) 90th Annual Convention. The SDAHO was celebrating “90 years of caring, advocacy and impact” and brought together more than 900 healthcare professionals from across the Great Plains region to share best practices, new innovations and emerging trends in improving patient care.
Ciaran shared his personal experience with sepsis and the work that the Rory Staunton Foundation does to improve the ability of hospitals to diagnose and treat the condition and to educate the public about its dangers and signs. During his visit he held several constructive meetings to advance the adoption of mandatory sepsis protocols in South Dakota. We hope that the Mount Rushmore State will soon join Illinois and New York in becoming #SepsisSafe!
Beginning Tuesday, September 20th the Rory Staunton Foundation is releasing four new Public Service Announcements to spread awareness of sepsis and inform the public of the signs of sepsis.
The first PSA, released September 20th, is called Katie – A Sepsis PSA from the Rory Staunton Foundation
The second PSA, released September 21st, is called Rory – A Sepsis PSA from the Rory Staunton Foundation
The third PSA, released September 22nd, is called Emily – A Sepsis PSA from the Rory Staunton Foundation
Today we are launching the first of four Public Service Announcements about sepsis. We will share a video each day, our hope and the hope of each family featured is that we can save lives.
Katie would have been married two years today. She was 26 years old when she died from undiagnosed and untreated sepsis. When she died she had been married for just three months. Katie and her family thought she had the flu and sought medical treatment, noone at the hospital checked for sepsis. Like us, her family had never heard of sepsis and didn’t know the signs. Katie’s mom Ann shares Katie’s story hoping to help others and to save them from the deep grief and indescribable pain they are feeling. Katie did not receive the care necessary to save her life, noone checked for sepsis, her family did not know the signs.
Please watch this PSA and share on Facebook and urge your friends in turn to share.
We will show a new PSA every day this week-each will tell the story of a beautiful life taken by sepsis; each death is a preventable death. The PSA’s will help you know the signs of sepsis.
Please watch, share and Think Katie…
Last Friday, September 2, the Rory Staunton Foundation and members of the National Family Council on Sepsis met with Massachusetts Health Commissioner, Monica Bharel, and her staff to discuss the process of implementing mandatory sepsis protocols in every hospital in Massachusetts.
We thank the Commissioner for her attention to this issue and to the members of Family Council on Sepsis in Massachusetts including Rebecca Taylor, Diana Rogier, Catherine King, Oscar King and Fiona McGarry who shared their concern and stories of heartbreak and lives lost needlessly to sepsis.
As ever, making changes in sepsis policy is a grassroots effort, driven by the voices of those who care about this issue in a personal way. We ask now that our friends and supporters in Massachusetts take a few moments to send a strong message to Commissioner Bharel and let her know that commonsense sepsis protocols are a priority for the families of Massachusetts.
Visit our Take Action page and send the letter found there to Commissioner Bharel in MA: https://rorystauntonfoundationforsepsis.org/take_action/.
Thank you for your advocacy and if you have friends or family in Massachusetts please share!