Today we are launching the first of four Public Service Announcements about sepsis. We will share a video each day, our hope and the hope of each family featured is that we can save lives.
Katie would have been married two years today. She was 26 years old when she died from undiagnosed and untreated sepsis. When she died she had been married for just three months. Katie and her family thought she had the flu and sought medical treatment, noone at the hospital checked for sepsis. Like us, her family had never heard of sepsis and didn’t know the signs. Katie’s mom Ann shares Katie’s story hoping to help others and to save them from the deep grief and indescribable pain they are feeling. Katie did not receive the care necessary to save her life, noone checked for sepsis, her family did not know the signs.
Please watch this PSA and share on Facebook and urge your friends in turn to share.
We will show a new PSA every day this week-each will tell the story of a beautiful life taken by sepsis; each death is a preventable death. The PSA’s will help you know the signs of sepsis.
Please watch, share and Think Katie…
Last Friday, September 2, the Rory Staunton Foundation and members of the National Family Council on Sepsis met with Massachusetts Health Commissioner, Monica Bharel, and her staff to discuss the process of implementing mandatory sepsis protocols in every hospital in Massachusetts.
We thank the Commissioner for her attention to this issue and to the members of Family Council on Sepsis in Massachusetts including Rebecca Taylor, Diana Rogier, Catherine King, Oscar King and Fiona McGarry who shared their concern and stories of heartbreak and lives lost needlessly to sepsis.
As ever, making changes in sepsis policy is a grassroots effort, driven by the voices of those who care about this issue in a personal way. We ask now that our friends and supporters in Massachusetts take a few moments to send a strong message to Commissioner Bharel and let her know that commonsense sepsis protocols are a priority for the families of Massachusetts.
Visit our Take Action page and send the letter found there to Commissioner Bharel in MA: https://rorystauntonfoundationforsepsis.org/take_action/.
Thank you for your advocacy and if you have friends or family in Massachusetts please share!
September is Sepsis Awareness Month and the Rory Staunton Foundation will be busy! Check out some highlights from our calendar:
Ciaran Staunton takes part in the 1st World Sepsis Congress. More than 6,500 people from across the globe have registered to take part in this online event. Other speakers include national health ministers, high-level representatives from the UN and WHO and leading healthcare experts.
The Rory Staunton Foundation’s Third National Forum on Sepsis – New York: New Ideas on Sepsis. We welcome healthcare professionals, policy experts, educators and patient advocates for a discussion of New York’s work addressing sepsis through education in schools, public awareness, caregiver education and training and hospital protocols. In addition, the CDC will present its new sepsis initiatives.
World Sepsis Day! Look out for new resources and campaigns from the Rory Staunton Foundation.
Ciaran Staunton will address a gathering of more than 800 representatives from hospitals, nursing homes and home and healthcare clinics at the South Dakota Association of Healthcare Organizations Annual Conference.
How hard it is to believe that the Rory Staunton Foundation’s Third National Forum on Sepsis is taking place on September 12th, 2016. Hard to believe because we are still fighting for sepsis to attain the stature it deserves among public and medical consciousness. It has been an uphill fight for us here at the Foundation, particularly dealing with some government agencies but we are happy to say that we have won many battles and saved many lives along the way.
Sepsis is killing over 250,000 Americans every year and many more who survive are dealing with horrendous medical conditions as a result of sepsis. Families are being torn apart because of sepsis and because of this we will never be silent. Our own lives and those of our fellow travelers at the National Family Council on Sepsis are changed forever, and it need not be this way, septic shock is preventable and we are not waiting for a cure-early diagnosis and treatment with broad spectrum antibiotics and iv fluids will and does save lives. But first we must think sepsis.
We are proud to be celebrating the work of New York State at this year’s Forum. New York State’s Department of Health instituted Rory’s Regulations in response to Rory’s death and in doing so we have saved thousands of lives. Hospitals throughout New York State have introduced sepsis protocols and our Homecare Agencies has begun educating their workers, teachers are educating about sepsis in schools. New York State is the template for other states to follow and just like Rory’s Regulations and the Parents Bill of Rights is saving thousands of lives here in New York it is also inspiring National Family Council Members to do similar work in their loved ones names in other states.
Click here for more information about the Third National Forum on Sepsis.
A Direct Plea to the Health Secretary and CDC: Heed Britain’s New National Directive and Treat Sepsis with Same Urgency as Heart Attack
The following press release is our response to the newly-released sepsis guidelines, released in Britain, which emphasize the critical importance of early diagnosis of by clinicians :
NEW YORK, NEW YORK (PRWEB) JULY 14, 2016
“In a landmark action, Britain’s health care watchdog, the National Institute for Health and Care Excellence (NICE), has issued a new guideline that instructs all health professionals to treat patients who show signs of sepsis with the same urgency as those with suspected heart attacks.
For the millions of American families whose loved ones have died needlessly from sepsis as a result of fatal delays in sepsis diagnosis and treatment, this guideline is a welcome development guaranteed to save many thousands of lives in Britain, where sepsis is responsible for 44,000 deaths each year. It is also a reminder of the inadequacies of the response of the U.S. government and healthcare system to sepsis, which must be classified as a full-blown public health crisis: In the United States, sepsis is responsible for between 250,000 and 500,000 deaths each year, according to data from the Centers for Disease Control and Prevention (CDC).
On behalf of our own family, which has endured the anguish of losing a child to a death that was entirely preventable, and the families of the National Family Council on Sepsis, we issue a direct appeal to Secretary of Health and Human Services, Sylvia Mathews-Burwell, and CDC Director, Dr. Tom Frieden, to endorse similar guidelines to protect Americans from this devastating condition. We hope that Britain’s actions will inspire our government to address sepsis with the urgency it so clearly deserves and enact the systemic, nationwide change that will save thousands of American lives.”
- Ciaran and Orlaith Staunton
The Stauntons are the co-founders of the Rory Staunton Foundation, a leading sepsis advocacy organization. (www.RoryStauntonFoundationForSepsis.org)
About the Guidelines
The NICE guideline instructs clinicians so start asking the basic question, “Could this be sepsis?” in any situation where an infection may be present as a first step in diagnosis and treatment. Rapid identification and treatment of sepsis is critical to avoiding fatalities and devastating disabilities, including amputations and cognitive damage. Sepsis is the body’s overreaction to any type of infection, which can lead to tissue and organ failure and, ultimately, death. Sepsis can affect anyone at any time, with even minor injuries resulting a catastrophic outcome. Such was the case with 12-year-old Rory Staunton, who died after grazing his arm playing basketball.
The NICE guideline provides clinicians with the signs and symptoms that indicate sepsis and its severity and describe the diagnostic tests and monitoring procedures required to diagnose and treat the patient. If identified as high risk, the guideline instructs that the patient be rushed to hospital by and ambulance and immediately seen by senior doctor or nurse.
NICE (www.nice.org.uk) is an executive non-departmental public body of the United Kingdom’s Department of Health. It is charged with producing guidelines, based on evaluations of efficacy and cost-effectiveness, for clinical practice, the use of health technologies within the NHS, guidance for public sector workers on health promotion and ill-health avoidance and social care services and users.
About the Rory Staunton Foundation
The Rory Staunton Foundation was established by Ciaran and Orlaith Staunton following the preventable death of their 12 year-old son, Rory, from sepsis in 2012. The Foundation is dedicated to improving the recognition and treatment of sepsis through public education and improved hospital protocols. Sepsis is the leading cause of death for infants and children worldwide. http://www.RoryStauntonFoundationForSepsis.org
Life is precious, treasure every moment. You never know when your picture, your life, will be torn apart.
Ciaran Staunton is interviewed by Indiana’s Fox59 Morning News
Recently, as part of the Rory Staunton Foundation’s ongoing campaign for sepsis awareness, Ciaran Staunton was a keynote speaker at the Indiana Patient Safety Center’s (IPSC) Patient Safety Summit in Indianapolis. Part of the Indiana Hospital Association, IPSC has been working with Indiana hospitals to improve sepsis awareness, early recognition and rapid treatment – with promising results.
The theme of this year’s Summit was The Power of One: Patient Safety Starts with You. The Rory Staunton Foundation was invited to speak as a compelling example of how a single, determined family can have a profound impact on patient safety for all Americans. Ciaran spoke about his family’s personal experience with sepsis and the work that the Rory Staunton Foundation has done on education and awareness, improving sepsis protocols in hospitals and advocating for increased federal resources to combat the sepsis public health crisis. While in the Hoosier state, Ciaran was interviewed by several network television news shows about sepsis and the campaign for for awareness and education.
Memorial Weekend, the start of summer, brings with it a wish from us that everyone stays safe and well.
Please remember to wash all cuts and wash your hands-this is the best way to avoid an infection. A tick bite, a mosquito bite, a scrape, all of these conditions, and many more, can, and do turn infectious.
Be an advocate for yourself and others. Don’t be afraid to ask medical professionals questions about a diagnosis or to speak up if you have concerns. There is so much being written these days about antibiotic responsibility, the most responsible thing to do is to avoid infection.
Antibiotics save lives, and we should never forget that-if you are worried that you are being denied an antibiotic ask what the reason for not giving an antibiotic is, if you are septic you need an antibiotic.
Sometime ago we received this message:
” I am so sorry that your beautiful son was tragically taken from you…God rest his gentle soul…My grandmother of 28 died of sepsis as a result of a burst appendix in 1932…I often think of her even though I never knew her. My mother, eighty three years later still talks of that time and the huge loss of Nora her beloved mother. I always thought that if only antibiotics had been around then, Nora would have survived.
It is shocking to read that your Rory did not get the antibiotics which would have saved him. In this advanced era of medical knowledge it should not have happened. We trust our doctors and rely on their expertise.”
Rory would be alive if he had received antibiotics. Advocate and understand your treatment if you are sick. Trust but verify.
The Rory Staunton Foundation and National Family Council on Sepsis members, Ann Ceschin and Chris Aiello, were in Atlanta this week for a two-day meeting with the CDC and other patient advocate groups to discuss sepsis and other causes of preventable deaths.
CDC Director, Dr. Tom Frieden, declared at the meeting that “the status quo on sepsis is not acceptable”. We couldn’t agree more! We look forward to some positive developments on sepsis coming from the CDC in the near future after our productive conversations this week.
At a meeting held last week in Washington D.C. with the Rory Staunton Foundation, the National Family Council on Sepsis and congressional staff, the Centers for Disease Control and Prevention (CDC) committed to the launch of a multimillion dollar, multi-year public awareness campaign dedicated solely to educating the public about sepsis. This campaign marks a breakthrough in the sepsis crisis in the United States. It is the first time the CDC has dedicated such significant resources to combating sepsis, which kills more than 250,000 Americans each year, leaves thousands more with devastating disabilities and is the most expensive condition treated in U.S. hospitals.
The meeting was convened by Senator Charles Schumer’s (D-NY) offices and instigated by families whose loved ones have died from sepsis. Staff members from the offices of the families’ congressional representatives were also in attendance. Congressional representatives of the members of the National Family Council on Sepsis will formally request the budget for the campaign.
The purpose of the meeting was to discuss how the CDC can work to reduce sepsis mortality rates through education and awareness programs targeting the general public, the media and healthcare professionals. Speaking after the meeting, Orlaith Staunton, Rory’s Mom said, “It was moving to sit at a table with other families who are mourning their loved ones. Since we buried our beautiful son, Rory, over one million Americans have died from sepsis. Many of those deaths were preventable. We welcome the recent decision and look forward to working with the CDC and others to the make the campaign a success.”