Life is Precious, Treasure Every Moment

precious, Rory Staunton Foundation, Sepsis, Rory Staunton, Kathleen Staunton, Sepsis, family, Rory's Regulations

Life is precious, treasure every moment. You never know when your picture, your life, will be torn apart.

Rory Staunton Foundation Extends Sepsis Awareness Campaign to Indiana

Indiana, Rory Staunton Foundation, Ciaran Staunton, Sepsis Awareness

Ciaran Indiana TV interview_croppedCiaran Staunton is interviewed by Indiana’s Fox59 Morning News

Recently, as part of the Rory Staunton Foundation’s ongoing campaign for sepsis awareness, Ciaran Staunton was a keynote speaker at the Indiana Patient Safety Center’s (IPSC) Patient Safety Summit in Indianapolis. Part of the Indiana Hospital Association, IPSC has been working with Indiana hospitals to improve sepsis awareness, early recognition and rapid treatment – with promising results.

The theme of this year’s Summit was The Power of One: Patient Safety Starts with You. The Rory Staunton Foundation was invited to speak as a compelling example of how a single, determined family can have a profound impact on patient safety for all Americans. Ciaran spoke about his family’s personal experience with sepsis and the work that the Rory Staunton Foundation has done on education and awareness, improving sepsis protocols in hospitals and advocating for increased federal resources to combat the sepsis public health crisis. While in the Hoosier state, Ciaran was interviewed by several network television news shows about sepsis and the campaign for for awareness and education.

Summertime…

summertime...

Memorial Weekend, the start of summer, brings with it a wish from us that everyone stays safe and well.

Please remember to wash all cuts and wash your hands-this is the best way to avoid an infection. A tick bite, a mosquito bite, a scrape, all of these conditions, and many more, can, and do turn infectious.

Be an advocate for yourself and others. Don’t be afraid to ask medical professionals questions about a diagnosis or to speak up if you have concerns. There is so much being written these days about antibiotic responsibility, the most responsible thing to do is to avoid infection.

Antibiotics save lives, and we should never forget that-if you are worried that you are being denied an antibiotic ask what the reason for not giving an antibiotic is, if you are septic you need an antibiotic.

Sometime ago we received this message:

” I am so sorry that your beautiful son was tragically taken from you…God rest his gentle soul…My grandmother of 28 died of sepsis as a result of a burst appendix in 1932…I often think of her even though I never knew her. My mother, eighty three years later still talks of that time and the huge loss of Nora her beloved mother. I always thought that if only antibiotics had been around then, Nora would have survived.

It is shocking to read that your Rory did not get the antibiotics which would have saved him. In this advanced era of medical knowledge it should not have happened. We trust our doctors and rely on their expertise.”

Rory would be alive if he had received antibiotics. Advocate and understand your treatment if you are sick. Trust but verify.

Rory Staunton Foundation & National Family Council on Sepsis Meet with CDC in Atlanta

Atlanta

The Rory Staunton Foundation and National Family Council on Sepsis members, Ann Ceschin and Chris Aiello, were in Atlanta this week for a two-day meeting with the CDC and other patient advocate groups to discuss sepsis and other causes of preventable deaths.

CDC Director, Dr. Tom Frieden, declared at the meeting that “the status quo on sepsis is not acceptable”. We couldn’t agree more! We look forward to some positive developments on sepsis coming from the CDC in the near future after our productive conversations this week.

CDC to Launch New Sepsis Initiative

Rory Staunton Foundation, CDC, Centers for Disease Control and Prevention, Sepsis

At a meeting held last week in Washington D.C. with the Rory Staunton Foundation, the National Family Council on Sepsis and congressional staff, the Centers for Disease Control and Prevention (CDC) committed to the launch of a multimillion dollar, multi-year public awareness campaign dedicated solely to educating the public about sepsis. This campaign marks a breakthrough in the sepsis crisis in the United States. It is the first time the CDC has dedicated such significant resources to combating sepsis, which kills more than 250,000 Americans each year, leaves thousands more with devastating disabilities and is the most expensive condition treated in U.S. hospitals.

The meeting was convened by Senator Charles Schumer’s (D-NY) offices and instigated by families whose loved ones have died from sepsis.  Staff members from the offices of the families’ congressional representatives were also in attendance. Congressional representatives of the members of the National Family Council on Sepsis will formally request the budget for the campaign.

The purpose of the meeting was to discuss how the CDC can work to reduce sepsis mortality rates through education and awareness programs targeting the general public, the media and healthcare professionals.  Speaking after the meeting, Orlaith Staunton, Rory’s Mom said, “It was moving to sit at a table with other families who are mourning their loved ones. Since we buried our beautiful son, Rory, over one million Americans have died from sepsis. Many of those deaths were preventable. We welcome the recent decision and look forward to working with the CDC and others to the make the campaign a success.”

Sepsis News From The Rory Staunton Foundation, April 2016

Sepsis News, Sepsis Newsletter, Rory Staunton Foundation for Sepsis Prevention, Rory Staunton

Here is our first edition of Sepsis News – a newsletter to keep you up to date on the latest developments in the fight against sepsis. To get this quarterly newsletter delivered directly to your inbox, sign up at the bottom of this webpage.

Click here to read the current edition of our newsletter.

Stepping Out Sepsis – Emily Edwards’ Family Honors Her​ with 5K Race/1 Mile Stroll​

Family, Rory Staunton Foundation, Emily Edwards, Stepping Out Sepsis in honor of Emily Edwards

Rory Staunton Foundation, Emily Edwards, Stepping Out Sepsis in honor of Emily EdwardsOn May 8, 2015, Becky Taylor’s family was changed forever. Her beloved aunt, who was also a mom, grandmother, sister and friend, was taken from them at the age of 67.
Emily Edwards’ killer was identified to her family as sepsis, a condition they had never before heard of.

After the loss of her aunt, Becky began to do some research, trying to understand how sepsis could take the life of a health woman so suddenly.  As she learned about sepsis, she began to realize how widespread it was, how many lives it claimed, how many families it shatters each year and how few people have heard of it.

She and her cousins decided to take action. They began a mission to spread awareness of sepsis and help people understand when to seek medical help. They launched the S.O.S Stepping Out Sepsis 5k race/1 mile stroll in their home town of Dracut, Massachusetts. The event will educate the community about sepsis and raise funds in support of the Rory Staunton Foundation. The first annual race will be held on May 8, 2016 – the first anniversary of Emily Edwards’ death.

Anyone can register for the race or contribute financially to the appeal.

Here are the details:

What: S.O.S Stepping Out Sepsis 5k race/1 mile stroll

When: May 8, 2016 at 9am

Where: Centralville Sportsmen’s Club, 308 Wheeler Rd, Dracut, MA 01826

To Register: https://www.runreg.com/sos-stepping-out-sepsis

For more information, email Becky at steppingoutsepsis@gmail.com or connect on Facebook athttps://www.facebook.com/groups/steppingoutsepsis/ .

Raffle tickets will be on sale for a number of great items, including a hockey stick signed by the Boston Bruins.

We would like to thank Becky Taylor and her family for raising funds for the Rory Staunton Foundation, which will be used to educate our communities about sepsis.

Rory, you are dead four years today…

Four, Rory Staunton, Rory Staunton Foundation for Sepsis Prevention,

Rory, you are dead four years today and the pain is still unbearable.

I remember you here with us, in our arms, with your beautiful smile and deep blue eyes that touched our souls.

You are missed so badly my darling…

 

Uncle Niall wrote you another beautiful poem

Uncle, Rory Staunton Foundation, Sepsis Education, Awareness and Prevention

Today, Rory, dear nephew, marks the fourth year without you, since I’ve seen your tousled red hair, freckled face, listened to your laugh.

Just 12, you were taken so soon, like a young appleseed, ready to grow to greatness but never allowed.

I miss the special moments with you, the smile, the rolling fights to the point where you were just about able to get me off the couch to join one of your child’s adventures.

There is an awful void when someone leaves, darkness that spreads to your soul.

Life is never the same again, especially when it is a handsome, brilliant young boy with a great life ahead.

I feel you are alive in the letters your parents and sister Kathleen get that

Someone else has been saved from sepsis through reading about your case

Or seeing it mentioned on their sepsis foundation site.

I knew you’d always end up doing something great, you were bound for victories on a chariot’s wings.

Instead the wings took you from us but the good you did lives hereafter.

Another year another lonely grave, a sense of despair that one so good

Can be so cruelly taken.

What I’d give to wrestle you again, discuss the presidential race,

Talk space travel, landing Sully’s plane and how he did it.

You knew all that and more, much more than I did,

Which is why your loss is so tough to bear.

I should finish on a high note but it doesn’t feel like that.

So much I want to talk to you about when we meet again,

And we will.

Your Uncle Niall.

 

Read the original poem on IrishCentral here.

On the Road to Sepsis Success in California

CHA Meeting PicIn February, we launched our campaign to introduce sepsis protocols in California. Ciaran, together with representatives from the National Family Council on Sepsis, traveled to Sacramento to meet with officials from the office of Governor Jerry Brown. He shared the devastating effect that sepsis has had sepsis on his own family and discussed the reasons behind the staggering mortality rate from sepsis, which kills more than 258,000 Americans each year. Ciaran also shared the positive impact that mandatory sepsis protocols, known as Rory’s Regulations, are having in New York State where they are projected to save between 5,000 and 8,000 New York lives each year. He encouraged Governor Brown to begin the process of adopting these regulations in California, where at least 32,000 residents die each year from sepsis.

Governor Brown’s aides were astonished by the number of lives lost to sepsis and made a commitment to investigate how various California hospital systems were dealing with the issue. California is home to the Kaiser Permanente health system which remains a gold standard in sepsis care, having reduced the mortality rate from sepsis by 40% throughout its hospitals. However, the story of eight year old Isabella Grace Fow of San Luis Obispo, who lost her life to sepsis at the age of eight, highlights the vastly differing standards of sepsis care in the state.

Ciaran also met with representatives of the California Children’s’ Hospital Association and the California Hospital Association to discuss the role these organization could play in improving California’s response to sepsis. As a result of the meeting, the California Hospital Association launched a public campaign through its website and social media channels to educate Californians about sepsis and its symptoms, using Rory’s Staunton’s story to highlight the importance of understandings its signs. A number of follow-up meetings have been planned and we look forward to partnering with the organizations moving forward.

In San Francisco, Ciaran met with various nurses’ groups and the Irish Immigration Pastoral Center organized several public outreach events to educate people, particularly the elderly, about sepsis and to encourage them to get involved in campaigning for improved sepsis measures in their state. In all, strong support for the increased hospital regulations was voiced and we are hopeful that California will be the next state to start reducing preventable deaths from sepsis through the implementation of common sense protocols.