Through our partnership with the American Federation of Teachers (AFT), the Rory Staunton Foundation offers comprehensive K-12 sepsis education lessons on the AFT’s Share My Lesson platform.
Teaching our children to protect themselves and their communities from infection and recognize the signs of sepsis is an important part of combating the condition. Read our blog on the AFT website and download the lessons here:
Leading health organizations and experts agree that lives can be saved when patients and healthcare professionals are able to recognize sepsis symptoms early on and receive or provide the right treatment. It’s important to make sepsis a household name so that when symptoms strike, people know to ask, “Could it be sepsis?”
This sepsis prevention curriculum will help you educate your students about this major health issue. Not only will today’s children be responsible for their own healthcare decisions as they grow up, but they will also become the doctors, nurses and other medical professionals of tomorrow.
The lessons below, which are aligned to various national standards, were created by teachers with experience teaching about sepsis in their own classrooms.
We urge you to share this sepsis prevention curriculum—full of engaging, standards-aligned preK-12 lessons—with your students during Sepsis Awareness Month and beyond, and join the coalition of educators, health professionals, legislators and families dedicated to spreading the word about sepsis in order to save lives. Get started with this two-minute sepsis tutorial, and then check out the lessons below, available at Share My Lesson and the Rory Staunton Foundation for Sepsis Prevention.
Tomorrow on World Sepsis Day, the world will get loud and explode with lifesaving messages about sepsis.
Our beautiful son Rory died on April 1, 2012-five months before the first World Sepsis Day. When he died sepsis was killing over 250,000 Americans annually, mutilating thousands of others. The world was largely silent about sepsis at that time-those who knew, did not disseminate the information; nobody told us about the killer in our midst. In fact, it was only at our urging and after many “heated” discussions that CDC posted their first sepsis web page in 2014.
When the explosion of information takes place tomorrow, some of us will fall silent in memory.
…It was Saturday, late March 2012 and Rory was in ICU. We had brought him to his doctor and the hospital on Thursday with a temperature and bearing all the symptoms of sepsis, we were desperately looking for help, we didn’t know about sepsis- “Go home!” we were told, “he will be fine.” On Friday night as his symptoms worsened we made a frantic dash to the hospital where he was admitted to ICU.
On Saturday morning, desperate to pick up some belongings, I returned home, a taxi waited outside. A little 10- year-old girl was sat on our couch, her beautiful eyes pierced mine.
“Mom, is Rory getting better?” Kathleen, Rory’s sister asked.
I didn’t really know how to answer, my brain was screaming, I didn’t know what was wrong with him! He had been a 5”9” healthy boy days before. He was now in ICU! I could only tell the truth…
“He’s not getting any better and he’s not getting any worse” I said.
“Will he be ok?” she asked, her eyes pleading.
“There are great doctors and nurses with him,” I said
“OK mom” she whispered.
As I left, I saw his best friend, his little sister begin to make a “Welcome Home Rory” poster as she settled in for the wait.
Rory got worse very quickly and died from sepsis. He did not come home.
Please listen to the noise tomorrow, you can save a life and bring someone home.
A report published yesterday in the prestigious Journal of the American Medical Association confirms for the first time that New York’s mandatory sepsis regulations are directly responsible for the significant decline in sepsis deaths in the state. After comparing sepsis admission records from New York State and four control states, the researchers found that sepsis mortality rates dropped further and faster in New York than in the control states following the adoption of the regulations. Researchers from the University of Pittsburgh have now proven that holistic, evidence-based protocols are the most effective tool we have to reduce the sepsis death toll.
These new findings have profound implications for how individual states and the federal government address the sepsis crisis, which kills more Americans that breast cancer, prostate cancer, opioid overdoses, and AIDS combined and is the most expensive condition treated in US hospitals. You can read our press release on the study’s findings here.
The report has garnered extensive media interest: A segment that aired yesterday on NPR’s All Things Considered, the country’s most listened to drive time news radio program, featured interviews with Orlaith Staunton and the study’s lead author, Dr, Jeremy Kahn from the University of Pittsburgh. You can listen to the full segment here.
The evidence is clear: sepsis protocols that include training within hospitals and public reporting of sepsis data are the most effective tool we have in the fight against sepsis. We will continue to fight for protocols in every state and we ask you to join us. Contact us to receive a toolkit with all the information you need to see protocols implemented in your state or make a tax deductible donation to the Rory Staunton Foundation to help us continue this vital work.
Our heartfelt thanks for your continued support.
Cormach Murrihy from Rockland County, New York, died tragically this weekend. Cormach was a shining light in the Irish community in New York and was a great supporter in our fight against sepsis.
Since Rory’s death, Cormach and his family have helped us get the message of the dangers of sepsis into the public arena. Just last year Cian Murrihy, Cormac’s 8-years-old son donated his $7,000 First Communion money towards the recovery of 19-year-old volunteer firefighter, Will McCue, who lost both his hands, a foot, and his right leg to septic shock.
We are saddened by Cormach’s passing and our thoughts are with his family especially his wife Vivienne, son Cian, and daughter Caoimhe.
A new study published in the Journal of Health Affairs shows more patients are receiving timely sepsis interventions in New York State, resulting in lowered mortality rates–but uncovers concerning racial disparities in quality of care.
New research found that hospitals with more black patients saw much smaller increases in compliance with new sepsis protocols than hospitals that treat mainly white patients, highlighting a need to evaluate the effects of quality improvement projects for minority groups.
PROVIDENCE, R.I.[Brown University] – The New York Sepsis Initiative was launched in 2014 with the goal of improving the prompt identification and treatment of sepsis. A new study has found that while the program has improved care over all, there were racial and ethnic disparities in the implementation of the best-practice protocols.
Sepsis is a life-threatening condition that occurs when the body’s extreme response to an infection triggers a chain reaction, said Dr. Mitchell Levy, a professor of medicine and chief of the division of Pulmonary, Critical Care and Sleep Medicine at Brown University’s Warren Alpert Medical School. “Even with the best care, the mortality rate is between 15 and 25 percent.”
Early identification and treatment of sepsis is essential for saving lives, and the multi-stage best practices for sepsis identification and treatment were codified in the New York Sepsis Initiative’s protocols. The new research, published Monday, July 1 in the July issue of the journal Health Affairs, found that during the first 27 months of the initiative, the percent of patients who received the complete 3-hour-long, best-practice protocol increased from 60.7 percent to 72.1 percent. At the same time, the in-hospital mortality rates for sepsis patients decreased from 25.4 percent to 21.3 percent, which aligned with prior research by Levy, who is also the medical director of the Medical Intensive Care Unit at Rhode Island Hospital.
However, the paper highlights a disparity in sepsis care between black and white patients.
Specifically, during the first 27 months of the initiative, black patients only experienced an increase of 5.3 percentage points in the completion of the best-practice protocol, while white patients experienced an increase of 14 percentage points. Hispanic and Asian patients experienced an increase of 6.7 and 8.4 percentage points respectively.
Being aware of these disparities is critical because the Centers for Medicare and Medicaid Services is considering trying sepsis protocol completion rates to hospital reimbursement, said Dr. Amal Trivedi, senior author on the paper and a professor at Brown’s School of Public Health and medical school. “If our study findings extend beyond New York, it raises concerns about the possibility of these quality improvement initiatives for sepsis exacerbating racial disparities in care.”
The researchers found that hospitals that serve higher proportions of black patients had smaller improvements in protocol completion. Within the same hospital, white and black patients received similar care, in terms of protocol completion rates, Trivedi said.
Prior research found that minority-serving hospitals tend to have more financial stress, fewer resources and less infrastructure to devote toward quality improvement measures, which is likely the reason why minority-serving hospitals had smaller improvements in sepsis protocol completion, Trivedi said. These hospitals also tend to treat more uninsured patients and those on Medicaid.
After adjusting for risks, such as type of infection, age and other chronic health conditions, the team did not find a statistically significant change in hospital mortality rates between racial and ethnic groups, despite the disparities in care delivery. During the first three months of the initiative, 25.8 percent of white sepsis patients and 25.4 percent of black sepsis patients died while in the hospital. Two years into the initiative, 21.3 percent of white sepsis patients and 23.1 percent of black sepsis patients died while in the hospital.
“Our work highlights the need for state and federal policy makers to anticipate and monitor the effects that quality improvement projects, such as the New York State Sepsis Initiative, have on racial and ethnic minority groups,” said Dr. Keith Corl, first author on the paper and an assistant professor of medicine in the division of Pulmonary, Critical Care and Sleep Medicineat Warren Alpert Medical School. “Racial and ethnic minority groups can get left behind. Knowing this, it is our job to better design and monitor these programs to ensure racial and ethnic minority patients realize the same benefits as white patients.”
Trivedi added that in order to improve health equity, policymakers may need to devote additional funding to under-resourced hospitals that experience challenges in improving sepsis care so that their performances can match that of other hospitals.
Other authors on the paper include Gary Phillips, a statistical consultant who is retired from Ohio State University; Kathleen Terry, a senior director at IPRO, a non-profit health care improvement organization; and Dr. Marcus Friedrich, the chief medical officer of the Office of Quality and Patient Safety at the New York State Department of Health. The research was approved by the New York State Department of Health’s Institutional Review Board.
The research was supported by a fellowship from the Department of Veterans Affairs as well as internal Warren Alpert Medical School funding.
There are bad days and there are better days and there are days when I plead to God to give me a break when memories are too painful to bear. And there are days when I lean into life in a way I never thought I could and find joy once again in a life which will always have you with us in spirit.
Your little sister made her way to college orientation this week, hard to believe she is now seventeen and soon beginning a new chapter in her life. We got to join her for orientation and so many conversations with other parents began with “Is this your first child going to college?” innocent, friendly conversations from one parent to another but each time a knife to my heart and a new dread thinking how many more times in my life do I have to answer this question, each answer a reminder of how you could have been saved.
You are not here and you will not be here. You did not make it to college and oh the world is a sadder place because of that.
She is great, that sister of yours…Kathleen. She is smart and she is brave and she is strong and she is kind… but she hurts and I saw that in all its glory this week at college. Her ice-breaker questions at orientation were about siblings too, how many, how few…
And so Rory when you left, no matter how many times we screamed your name and wanted you back, the world kept turning. We try to find the courage to live a meaningful life where sadness and joy can co-exist, we fight for a future, one lost to you, a future never guaranteed to anyone. A future noone can take for granted.
An exciting new report from our friends at the University of Pittsburgh Medical Center shows that sepsis is in fact several distinct conditions requiring different treatment approaches. This important research could be a powerful breakthrough in sepsis care. Read the full release below:
PITTSBURGH, May 19, 2019 – Much like cancer, sepsis isn’t simply one condition but rather many conditions that could benefit from different treatments, according to the results of a University of Pittsburgh School of Medicine study involving more than 60,000 patients.
These findings, announced today in JAMA and presented at the American Thoracic Society’s Annual Meeting, could explain why several recent clinical trials of treatments for sepsis, the No. 1 killer of hospitalized patients, have failed. Sepsis is a life-threatening condition that arises when the body’s response to an infection injures its own tissues and organs.
“For over a decade, there have been no major breakthroughs in the treatment of sepsis; the largest improvements we’ve seen involve the enforcing of ‘one-size fits all’ protocols for prompt treatment,” said lead author Christopher Seymour, M.D., M.Sc., associate professor in Pitt’s Department of Critical Care Medicine and member of Pitt’s Clinical Research Investigation and Systems Modeling of Acute Illness Center. “But these protocols ignore that sepsis patients are not all the same. For a condition that kills more than 6 million people annually, that’s unacceptable. Hopefully, by seeing sepsis as several distinct conditions with varying clinical characteristics, we can discover and test therapies precisely tailored to the type of sepsis each patient has.”
In the “Sepsis ENdotyping in Emergency Care” (SENECA) project, funded by the National Institutes of Health (NIH), Seymour and his team used computer algorithms to analyze 29 clinical variables found in the electronic health records of more than 20,000 UPMC patients recognized to have sepsis within six hours of hospital arrival from 2010 to 2012.
The algorithm clustered the patients into four distinct sepsis types, described as:
Alpha: most common type (33%), patients with the fewest abnormal laboratory test results, least organ dysfunction and lowest in-hospital death rate at 2%;
Beta: older patients, comprising 27%, with the most chronic illnesses and kidney dysfunction;
Gamma: similar frequency as beta, but with elevated measures of inflammation and primarily pulmonary dysfunction;
Delta: least common (13%), but most deadly type, often with liver dysfunction and shock, and the highest in-hospital death rate at 32%.
The team then studied the electronic health records of another 43,000 UPMC sepsis patients from 2013 to 2014. The findings held. And they held again when the team studied rich clinical data and immune response biomarkers from nearly 500 pneumonia patients enrolled at 28 hospitals in the U.S.
In the next part of the study, Seymour and his team applied their findings to several recently completed international clinical trials that tested different promising therapies for sepsis–all of which had ended with unremarkable results.
When trial participants were classified by the four sepsis types, some trials might not have been failures. For example, early goal-directed therapy (EGDT), an aggressive resuscitation protocol that includes placing a catheter to monitor blood pressure and oxygen levels, delivery of drugs, fluids and blood transfusions was found in 2014 to have no benefit following a five-year, $8.4 million study. But when Seymour’s team re-examined the results, they found that EGDT was beneficial for the Alpha type of sepsis patients. Conversely, it resulted in worse outcomes for the Delta subtype.
“Intuitively, this makes sense–you wouldn’t give all breast cancer patients the same treatment. Some breast cancers are more invasive and must be treated aggressively. Some are positive or negative for different biomarkers and respond to different medications,” said senior author Derek Angus, M.D., M.P.H., professor and chair of Pitt’s Department of Critical Care Medicine. “The next step is to do the same for sepsis that we have for cancer–find therapies that apply to the specific types of sepsis and then design new clinical trials to test them.”
Additional authors on this research publication are Jason N. Kennedy, M.S., Shu Wang, M.S., Chung-Chou H. Chang, Ph.D., Zhongying Xu, M.S., Gilles Clermont, M.D., M.Sc., Hernando Gomez, M.D., M.P.H., David Huang, M.D., John A. Kellum, M.D., Qi Mi, Ph.D., Victor Talisa, M.S., Shyam Visweswaran, M.D., Ph.D., Yoram Vodovotz, Ph.D., and Donald M. Yealy, M.D., all of Pitt; Corrine F. Elliott, M.S., and Scott Berry, Ph.D., both of Berry Consultants in Texas; Steven M. Opal, M.D., of Rhode Island Hospital; Tom van der Poll, M.D., Ph.D., of Pitt and the University of Amsterdam; Jeremy C. Weiss, M.D., Ph.D., of Carnegie Mellon University; and Sachin Yende, M.D., M.S., of Pitt and the VA Pittsburgh Healthcare System.
This research was funded by NIH grants R35GM119519, P50GM076659, R34GM102696, R01GM101197, GM107231, R01LM012095, K08GM117310-01A1 and GM61992.
Read the release online: https://www.upmc.com/media/news/051919-seymour-seneca.
Here at the Foundation, we are guided every day by our memories of Rory. Rory was a leader, an advocate, a believer in the ability of the individual to make a difference. That’s why we are always especially delighted to recognize the work that young people–the leaders of tomorrow (and in some cases, today!)–are doing to further sepsis awareness.
In honor of World Hand Hygiene Day, we’d like to recognize several young people whose dedication to educating their communities about sepsis fills is with hope:
1. Caroline Robitaille of Union Township, New Jersey, is a Girl Scout Cadette in the eighth grade. After reading an article about Rory and the work of our Foundation, Caroline dedicated herself to raising awareness of sepsis ahead of World Sepsis Day. Caroline developed the “Pink Day Out” campaign and persuaded the Union Township PTA and School Board to support it and to supply the elementary school classes in her district with copies of Ouch! I Got a Cut!, the Foundation’s book for young readers. She was able to take a day off school to read the book to all five elementary school classes and educate them further about sepsis. According to Caroline, “The week after my talk at the elementary school, my family and I were out in town and we saw the parents of one of the students I read to. The mom came up to me and thanked me for teaching her daughter about proper wound care as she was so impressed what she learned about sepsis and what her daughter taught her family. That made me very proud.” We’re proud of you too, Caroline! Caroline is now in the running the receive the Girl Scout Silver Award for her work raising awareness of sepsis.
2. Talia Coopersmith is a high school junior in Atlanta, Georgia. Talia chose to implement sepsis education in her school district for her Girl Scout Gold Award project after being inspired by the Foundation’s work. She designed presentations for elementary and middle school students in her district and thoughtfully took note of the different levels of knowledge she encountered at different schools. “This disparity helped me to understand the importance of the foundation’s lesson plans. They are very accessible to their targeted age group and do a very good job of building up information,” she said. Talia deserves our sincere thanks and appreciation for teaching hundreds of children a potentially lifesaving lesson!
3. Many of you know Kathleen Staunton, Rory’s younger sister. Kathleen adored her big brother and her life will never be the same after losing him. Kathleen was inspired to write Ouch! I Got a Cut! with her mother after watching a wound on a basketball court go untreated–exactly as Rory’s was. The read-along book for young children teaches the importance of caring for cuts and scrapes to prevent infection. Kathleen led a reading of the book with elementary classes at her school. “I’m glad I got to share the three C’s with the Lower School: If you get a cut, clean and cover it. Our three C’s campaign can protect everyone from dirt and germs that cause infection and help them stay healthy and strong!”
Dr. Martin Doerfler, senior vice president of clinical strategy and development and associate chief medical officer at Northwell Health and Medical Advisor to the Rory Staunton Foundation has co-authored a new study that assesses the differences between hospital-presenting sepsis (HPS) and emergency department-presenting sepsis (EDPS). “In an effort to continue finding solutions that curtail the concerning numbers of fatalities as a result of sepsis, we set out to explore how this condition manifests itself both in the in-patient and emergency room locales, and the various challenges associated with recognition, treatment and monitoring,” said Dr. Doerfler. “As clinicians, we need to better to understand this knowledge gap so that we can correct the origins of the disparities.”
The findings appeared on April 8 in the Journal of Hospital Medicine, the official peer-reviewed journal of the Society of Hospital Medicine. The study finds the HPS disproportionately results in adverse patient outcomes, concluding that increased efforts were needed to improve recognition of sepsis during hospitalization. Read the full journal article here.