Six Years Dead Today
I checked tonight it’s 2,190 days since I last saw my lovely Rory, six years, a lifetime. If anyone thinks that losing a child gets easier with time, I’m here to tell you that no, it doesn’t get easier, it’s a life sentence. I still lie awake at night, I still think about what happened all the time and I still love my young boy as if it were yesterday. No time, no months, no days, no hours will every change that.
I want Rory’s name to live on forever because he deserves that. His life story should not end because he and us, his loving family were let down by a lot of people and institutions we trusted; his school, his pediatrician and the hospital that we brought him to, that sent him home when he was very ill. Rory’s love and his spirit keep us going and will continue to keep us going forever.
Noone should die from sepsis because it’s preventable. Yes, infections happen all the time, but people don’t have to die from an infection, particularly a healthy 12-year-old boy like Rory. I am an angry mom because noone diagnosed sepsis in my child despite our pleas, they ignored our concerns and I am angry for every child and every loved one that dies from sepsis because it doesn’t have to be that way.
So, social media is very important to me. It makes a difference that people read about Rory and sepsis because awareness saves lives. I can’t bring Rory back but I can save others from going through our hell. If you know Rory’s story, or Emily Aiello’s story, or Clover Harrold’s story and so many other loved one’s stories that have died or suffered from sepsis then we can save lives because people will have the knowledge they need to ask questions.
I want to thank all our family and friends and everyone for their support throughout these awful years. Without your support, we would not be here. We will keep on fighting, although at times it is so very hard. But, It is harder to think of Rory’s death and to think that his death might be the end of his life story.
Rory’s love will keep us strong and his love will make a difference in this world. I wish others in power had spoken out before he died and I will never forgive those who could have made changes and didn’t. I am not going to lie, life and people have disappointed us, but we are fighters and together we can make a difference; we can all keep fighting for change, for more awareness and fewer deaths from sepsis.