Rory’s Regulations

Rory Staunton Foundation, Sepsis Education, Awareness and Prevention, Rory’s Regulations,

N.Y. Governor Cuomo: N.Y. first U.S. state to enact Rory’s Regulations on sepsis prevention

New York Times: Cuomo plans new rules in fight against sepsis

The death of any child is untimely and tragic.  However, the tragedy of Rory Staunton’s death is made worse by the fact that it was entirely preventable.  Rory’s pediatrician and the emergency room staff at NYU Langone hospital missed the numerous physical warnings of an aggressive sepsis infection until it was too late to save Rory’s life.  Rory’s parents – and parents everywhere – rightfully expect health care providers to be able to quickly diagnose and treat sepsis infections in children.

Rory Staunton Foundation, Sepsis Education, Awareness and Prevention, Rory’s RegulationsThe story of Rory’s remarkable young life and terrible death has led to a series of bipartisan legislative and regulatory mandates in New York and elsewhere, requiring health care providers to develop and implement protocols to rapidly diagnose and treat sepsis infections.  Although some health care providers already provide diligent, necessary diagnosis and treatment of sepsis, Rory’s story – and the Staunton family’s experience – makes it clear that even in a high-developed health care environment like New York City, absent legislation, regulations, education and outreach mandating heightened sepsis awareness, diagnosis and rapid treatment, the terrible and tragic circumstances of Rory’s last days and painful death could be easily visited on other families and their children.

The Rory Staunton Foundations applauds and supports legislative and regulatory initiatives insisting on improved health care procedures to quickly diagnose and treat sepsis.  At the same time, The Rory Staunton Foundation is undertaking its own education and outreach initiatives to inform parents, schools and communities about the risks and symptoms of sepsis, with the goal of empowering families, schools and community organizations to be their own best advocates for early diagnosis and treatment of sepsis.

We welcome assistance and support of all of these initiatives, and look forward to working with you to ensure that no other family share the heartbreaking pain and loss experienced by the Staunton family.

This will be Rory’s legacy.

Full text from the New York Department of Health on Rory’s Regulations
Full text from New York Department of Health on Parents’ Bill of Rights